I can’t believe Thanksgiving is just two days away! I feel like just days ago I was
starting my fall semester at James Madison; but here I am spending Thanksgiving
break sleeping an ungodly amount of hours, instead of wasting it studying my
life away. This semester, by far,
has been the most challenging Lyme semester I have ever faced in my life. I have faced the inner black holes of
Lyme through and through and am still waiting to see the light. Often times I wonder if the light is
ever going to come.
Since my last update, the second round of that protocol was
much harsher than the first round of that protocol for some reason. I contribute that to temperature
changes, more stress, not eating as much or as well as I needed to be, and
getting attacked by numerous small infections. So, it made all of my Babesia symptoms worse. About half way through the protocol I
completely switched to green smoothies and eating all clean with the exception
of chicken once a day. I saw
dramatic improvements in my energy levels and overall coloring in my face. I have been able sustain that
since.
When I went to the doctors, last time I was given a
completely different protocol it is only 13 days long with 15 days off.
Days 1,2,3- artimissinin, septra ds, daraprim,
Days 1 &3- Mepron, Merropenom and Cipro by IV
Day 4- Flagyl and Diflucan
Day 5- off antibiotics
Day 6,7,8- 2 X daily Merropenom and Cipro by IV
Day 9,10 off
Day 11-13-- CoArtem
Like I said, short, sweet and to the point. Right now I am on day 5 and feel very
high/spacey. I feel like other
people cannot connect with me and like I cannot connect with them. I often feel like this but it is
exasperated now. I am sick of
everyone; I am sick of no one understanding what it is like to be me or go
through what I have to go through every damn day. It is becoming exhausting to try to please other people; I
hate putting on a show. I am very
thankful to have a couple of people that do listen and try to understand. How do others deal with their
emotions? What have been people’s
reactions to Daraprim? Also how do
people deal with herxing?
“I have come to believe that caring for myself is not self
indulgent. Caring for myself is an
act of survival.”
